Trips galore…on the road again.

Hi all!  Tomorrow, I will be heading with my husband and son to New Mexico where I was born.  We will be there visiting family and eating a shit ton of green and red chili!  I am sure I will be somewhat non-compliant with my low sodium diet because my family has some kind of obsession with salt!  Seriously, it is ridiculous and surprising they all do not have heart disease!  Anyway, we will be enjoying ourselves immensely.  Though, I am a bit scared about the altitude.  Spokane sits at about 1800ft, my house is at 2300ft.  People with Pulmonary hypertension or heart failure do not do well with high altitudes.  Albuquerque sits around 5300ft, is where my mom lives.  Grants, NM, where my dad and most family live (the town I was born) sits at 6400ft!  I hope I can acclimate to it ok but I am sure I will be more tired and more short of breath than usual.  I may have to crank my oxygen way up! While I was in San Diego, at Sea level, I felt amazing!  I even forgot I needed oxygen once and nearly left a restaurant without my concentrator!  I will put up a few articles i found that explain how high altitudes may affect someone with cardiopulmonary problems at the bottom of this page.

I know some of you were hoping t0 hear what UCSD had to say about new lungs.  I am sorry to report I have not heard the “final” word yet.  I should get news day and I don’t wanna write about it until then.  However, I wanted to share some pics from the trip!    I’ll check in when I am home, please send good vibes and thoughts of clean air my way! 🙂

 

http://emedicine.medscape.com/article/901668-overview

The Effects of Altitude on Lung Disease

http://www.altitudemedicine.org/altitude-and-pre-existing-conditions/

https://www.gofundme.com/4gzbpkhc

 

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One step at a time….then a mile!

After resting all day yesterday and today I asked Scott if he wanted to go on a walk. We used to this every night after dinner but since I got sick we haven’t. In October I couldn’t even walk half a block. I am excited to report that I walked a mile!  We walked the dogs to the park and back home. It took me a while but helped having Buster pull me along.  I am hoping that I didn’t overdo it and that I won’t feel like poo poo tomorrow because I’d like to try it again! 

I know a lot of you are wondering how the trip to San Diego went.  I will write about that soon. In short, the transplant team needs time to discuss in their meeting and take an in depth look at my lung CT before making a decision.  As soon as I know and process I will blog.  Thanks for reading and the constant encouragement! 

San Diego here we come!

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Just a real quick update as I race around the house getting ready for my trip to San Diego today!  Our flight leaves at 3pm and I am still packing, I’ve never really grown out of procrastinating.  I am probably procrastinating as I sit down to type this,  rather than filling out the paperwork I need to do for my appointment tomorrow!  Any-who, that is the point of this entry isn’t it?  My appointment tomorrow is at University of CA San Diego Transplant team.  It is an all day appointment where they will assess me physically, psychologically (lord help them) and assess my level of support.  It will be up to them based on ALL OF THOSE whether or not they feel I am a good candidate for some new lungs.  I still have mixed feelings on the surgery, which I may delve into at another time.  Ain’t no one got time for that right now, trust me!  I am also not getting my hopes up just looking forward to a doctors visit and a mini vacation with some of the best people!

I am so lucky to have so much LOVE in my life.  So many friends and family have sent me well wishes already to begin my journey.  Please continue to send that amazing energy our way!  Again thank you for the help with my gofundme as this traveling gets expensive and there will hopefully be more trips to  come!  I wouldn’t be half the person I am without everyone’s support and love!  https://www.gofundme.com/4gzbpkhc